ALS Soci­ety Feb­ru­ary Newslet­ter /​Info­let­tre Février

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The ALS Soci­ety of Quebec’s monthly newsletter

Save the date:

Annual gen­eral meet­ing on Feb­ru­ary 11th

Ms. Susan Ken­nerknecht, Pres­i­dent of the Board of direc­tors of the ALS Soci­ety of Que­bec invites all mem­bers to the Society’s Annual Gen­eral Meet­ing. Researchers will be present, and a wine & cheese cock­tail will fol­low the presentations.

Time:

5:00pm to 6:00pm = pre­sen­ta­tion and 6:30pm to 8:30pm = Pre­sen­ta­tion on research includ­ing Q&A.

Loca­tion:

Ruby Foo’s Hotel (7655 Décarie Blvd, Mon­tréal, QC H4P 2H2 ) SIN­GAPOUR ROOM

Reg­is­tra­tion:

Eliz­a­beth at This email address is being pro­tected from spam­bots. You need JavaScript enabled to view it. or 514 7252653,
p. 103

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Feb­ru­ary 3: Mon­treal – For care­givers only

Time :

6pm to 8pm

Location :

Nova West Island, 447, Bea­cons­field Blvd., in Bea­cons­field H9W 4C2

Reg­is­tra­tion :

Leslie Mitchell at 514 6958335, ext. : 205 or by email at This email address is being pro­tected from spam­bots. You need JavaScript enabled to view it.

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Feb­ru­ary 7: Gatineau – For peo­ple with ALS and caregivers

Time :

1:30pm to 15:30pm*

* You are wel­come to arrive as of 1:15pm so you can set­tle in com­fort­ably before the start of the sup­port group at 1:30pm

Loca­tion :

La Ressource, 135, boule­vard Saint-​Raymond, Gatineau J8Y 6X7

Rooms : 1235 (Marc-​Senechal) and 1245

Registration :

Eliz­a­beth at 514 7252653, ext. 103 or by email at This email address is being pro­tected from spam­bots. You need JavaScript enabled to view it.

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Feb­ru­ary 17: Que­bec – For peo­ple with ALS and caregivers

Time :

1:30pm to 3:30pm

* You are wel­come to arrive as of 1:15pm so you can set­tle in com­fort­ably before the start of the sup­port group at 1:30pm

Loca­tion :

Cen­tre Noël-​Brulart (1229, Chanoine-​Morel, Que­bec, G1S 4B1)

Registration :

Odette Lacroix at 418 6268726 /​418 6558726 or by email at This email address is being pro­tected from spam­bots. You need JavaScript enabled to view it.

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Feb­ru­ary 20: Lor­raine – For peo­ple with ALS and caregivers

Time :

10am to 12:30am

Location :

Cen­tre cul­turel Lau­rent G. Bel­ley – 4, de Mont­béliard, Lor­raine J6Z 4L1

Registration :

Eliz­a­beth at 514 7252653, ext. 103 or by email at This email address is being pro­tected from spam­bots. You need JavaScript enabled to view it.

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Feb­ru­ary 20: Mauricie – For peo­ple with ALS and caregivers

Facil­i­ta­tors :

Thérèse Carig­nan and Angèle Doucet

Time :

1:30pm to 3:30pm

Location :

Habi­ta­tion du Vieux Moulin. 521 Notre-​Dame east. Secteur Cap-​de la Madeleine, Trois-​Rivières

Registration :

Thérèse Carig­nan at 819 6991551 or by email at This email address is being pro­tected from spam­bots. You need JavaScript enabled to view it.

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Jan­u­ary 28 and Feb­ru­ary 4 – Inter­ac­tive con­fer­ence on cop­ing with cumu­la­tive loss – ambigu­ous loss : a first step

Con­fer­ence ani­mated by Clara C. Verhas-​Breyne, a care­giver, actor and mosaic artist by train­ing. This con­fer­ence will cover the fol­low­ing themes: 1– The jour­ney of dis­cov­er­ing the word ‘loss’ and how it can illu­mi­nate the path; 2– Some notions to bet­ter under­stand loss, with exam­ples; 3– Effec­tive tools to con­tinue mov­ing for­ward; 4– How such a demand­ing path can also be a bright one.

Your atten­dance is required for both inter­ac­tive con­fer­ences. Con­fer­ence is in French. Trans­la­tion is available.

Time : 1pm to 4pm

Where :Saint-​Laurent Recre­ation Cen­ter, 1375 Grenet Street, 2nd floor, Room AB225, Saint-​Laurent, QC H4L 5K3

Reg­is­tra­tion : Chate­laine Nor­mandin : (514) 8666801, ext 227 or This email address is being pro­tected from spam­bots. You need JavaScript enabled to view it.

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Tele­con­fer­ence :Doing your taxes

What’s in it for you?

Feb­ru­ary 3rd, Join us for an infor­ma­tion ses­sion to find out about ben­e­fit and credit pay­ments you could get from the Canada Rev­enue Agency if you do your taxes every year.

Here is an overview on what will be dis­cussed:
— What is the Dis­abil­ity Tax Credit (DTC) and are you eli­gi­ble for it?

- Apply for the DTC in 3 steps;

- What hap­pens after the T2201 form is sent?

- Claim the dis­abil­ity amount;

- Care­giver amount

- Reg­is­tered Dis­abil­ity Sav­ings Plan (RDSP);

- Vol­un­teer Pro­gram and Online ser­vice — My Account.

Guest speaker : A rep­re­sen­ta­tive from the Canada Rev­enue Agency will share infor­ma­tion on how ben­e­fits are cal­cu­lated, how and when you should apply for ben­e­fits, and will answer any ques­tions you might have

Time : 1:30 PM to 2:45 PM ( Eng­lish) and from 3:15 PM to 4:30 PM (French)

Reg­is­tra­tion : Eliz­a­beth at 514 7252653, ext. 103 or by email at

This email address is being pro­tected from spam­bots. You need JavaScript enabled to view it.

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Fundrais­ing activ­i­ties orga­nized by the ALS community

It is thanks to fundrais­ing ini­tia­tives orga­nized within our com­mu­nity that we can pro­vide per­son­al­ized ser­vices to fam­i­lies touched by ALS across the province. Gather your fam­ily and friends and sup­port fundrais­ing activ­i­ties in your region! To cre­ate your own fundrais­ing event, please click here.

28 Feb­ru­ary – Kick­box­ing gala

On Feb­ru­ary 28, 2019, come out to Mont-​Laurier for a fundrais­ing kick­box­ing gala ben­e­fit­ing the ALS Soci­ety of Que­bec!

Date : Feb­ru­ary 28, 2020
Where: Espace-​Théâtre Muni-​Spec: 543 Rue du Pont, Mont-​Laurier, QC J9L 0L4
Time : 7pm

Admis­sion :
Over 18 years old: $50
Under 18 years old: $25

Tick­ets:
Online:
Click here!
By phone: 8196231944

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Clin­i­cal tri­als recruit­ing now!

A phase 3 clin­i­cal trial

The VALOR clin­i­cal trial (Clin​i​cal​Tri​als​.gov Iden­ti­fier: NCT02623699), is actively recruit­ing patients with a con­firmed SOD1 muta­tion, or sus­pected fam­ily his­tory of ALS. The trial has a full travel pro­gram in place, cov­er­ing flights, hotels, and ground trans­porta­tion for patients within less than 6 hours of fly­ing time from a trial site. Accel­er­ated genetic test­ing for the SOD1 gene is avail­able through the clin­i­cal trial, with genetic coun­selling sup­port pro­vided. We are encour­ag­ing all patients with either con­firmed SOD1 muta­tions, or a sus­pected fam­ily his­tory, to reach out to obtain more infor­ma­tion. Fam­ily mem­bers of patients known to have had an SOD1 muta­tion are also very wel­come to con­tact the sites to obtain more infor­ma­tion about the trial.

Con­tact: Kris­tiana Salmon at This email address is being pro­tected from spam­bots. You need JavaScript enabled to view it. or 5143981779

A phase 1 clin­i­cal trial

Bio­gen 245AS101 (Clin​i​cal​Tri​als​.gov Iden­ti­fier: NCT03626012), is recruit­ing patients with a con­firmed C9orf72 repeat expan­sion, or have a sus­pected fam­ily his­tory of ALS and/​or demen­tia. This trial has a full travel pro­gram in place, cov­er­ing flights, hotels, and ground trans­porta­tion for patients within less than 6 hours of fly­ing time from a trial site. Accel­er­ated genetic test­ing for the C9orf72 repeat expan­sion is avail­able through the clin­i­cal trial, with genetic coun­selling sup­port pro­vided. We are encour­ag­ing all patients with either a con­firmed C9orf72 repeat expan­sion, or a sus­pected fam­ily his­tory, to reach out to obtain more infor­ma­tion. This is a Phase 1 trial that recruits patients in small groups, there­fore, recruit­ment is not always open and as such we encour­age those inter­ested to reach out early.

Con­tact: Kris­tiana Salmon at This email address is being pro­tected from spam­bots. You need JavaScript enabled to view it. or 5143981779

A phase 1 clin­i­cal trial

AL-​S Pharma AP101 (Clin​i​cal​Tri​als​.gov Iden­ti­fier: NCT03981536), is recruit­ing patients with famil­ial ALS, with con­firmed SOD1 muta­tion, or spo­radic ALS. This is a Phase 1 trial that recruits patients in small groups, there­fore, recruit­ment is not always open and as such we encour­age those inter­ested to reach out early.

Con­tact :Juli­ette Foucher at This email address is being pro­tected from spam­bots. You need JavaScript enabled to view it. or 5143981902

ALS Soci­ety of Quebec’s events

Infor­ma­tion: For more infor­ma­tion about all of our fundrais­ing events, please con­tact us at at 514 7252653, ext. 105 or by email at This email address is being pro­tected from spam­bots. You need JavaScript enabled to view it..

Ride to Fight ALS pow­ered by TELUS Health:
Reg­is­tra­tion is open!

August 28 to 30

Saint-​Hyacinthe

From August 28th to the 30th, join us for the 13th edi­tion of the Ride to Fight ALS pow­ered by TELUS Health! This year, the event will take place at the Sher­a­ton Saint-​Hyacinthe Hotel, in the Mon­térégie region. More than 250 cyclists and vol­un­teers will come together to par­tic­i­pate in this unique cycling event!

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ALS Soci­ety of Que­bec
This email address is being pro­tected from spam­bots. You need JavaScript enabled to view it. |sla​-que​bec​.ca
5415, rue Paré, bureau 200, Mont-​Royal, Québec, H4P 1P7, Canada



Last Updated: Thurs­day, 06 Feb­ru­ary 2020 15:53