ALS Soci­ety of Que­bec Newslet­ter Octo­ber 2021

In this newslet­ter, you will find:

- The vir­tual sup­port groups and con­fer­ences for Octo­ber;

- The infor­ma­tion for the Seize the day experience.

Vir­tual Sup­port Groups

Virtual Sup­port Group – For peo­ple with ALS

This group is for peo­ple liv­ing with ALS. If you wish to dis­cuss, obtain infor­ma­tion or be in the com­pany of oth­ers who know what you’re going through, please join us!

When ?

Thurs­day, Octo­ber 7, from 1:30 PM to 3 PM

Where ?

On Zoom*

Reg­is­tra­tion :

Please click here to reg­is­ter for this sup­port group.

Vir­tual Sup­port Group – For the bereaved

Los­ing a loved one to ALS is never easy. You are invited to a time together for those who have been touched by the loss of a loved one to ALS in recent years. Please join us for a vir­tual time of shar­ing on loss, grief and resilience with a respect­ful and sup­port­ive community.

*We invite you to pre­pare a photo or item in honor of your loved one, to share with the group if you wish. We also invite you to bring a can­dle or sim­i­lar lumi­nous object to light in their honor.*

The meet­ing will take place via Zoom and we will use sep­a­rate rooms for each lan­guage, depend­ing on the needs of the participants.

When ?

Thurs­day, Octo­ber 14, from 7 PM to 8:30 PM

Where ?

On Zoom*

Reg­is­tra­tion :

Please click here to reg­is­ter for this sup­port group.

Vir­tual Sup­port Group for Que­bec city – For peo­ple with ALS and caregivers

This group is for peo­ple liv­ing with ALS, as well as their friends, fam­i­lies, and care­givers, who are inter­ested in what’s going on in the region of Que­bec and the sur­round­ing areas. If you wish to dis­cuss, obtain infor­ma­tion or be in the com­pany of oth­ers who know what you’re going through, please join us!

When ?

Thurs­day, Octo­ber 18, from 1:30 PM to 3 PM

Where ?

On Zoom*

Reg­is­tra­tion :

Please click here to reg­is­ter for this sup­port group.

Vir­tual Sup­port Group – For care­givers

This group is for care­givers, friends, and fam­ily of those liv­ing with ALS. If you wish to dis­cuss, obtain infor­ma­tion or be in the com­pany of oth­ers who know what you’re going through, please join us!

When ?

Thurs­day, Octo­ber 21st, from 1:30 PM to 3 PM

Where ?

On Zoom*

Reg­is­tra­tion :

Please click here to reg­is­ter for this sup­port group.

*Our Zoom app user guides are avail­able here.

Con­fer­ences

Con­fer­ence – Imposed occu­pa­tional tran­si­tion: When ALS imposes a change of direction

The diag­no­sis of ALS, like a train that has to change tracks sud­denly, imposes a change of direc­tion on one’s own life and those of one’s loved ones. Unlike retire­ment, where it is pos­si­ble to plan and choose the direc­tion of one’s new life out­side of work, ALS is an imposed occu­pa­tional tran­si­tion. How can we make sense of this imposed occu­pa­tional tran­si­tion, which dis­rupts our occu­pa­tional iden­tity, the roles we have assumed, and the skills we have acquired?

This con­fer­ence pro­poses con­crete solu­tions through the search for and ini­ti­a­tion of mean­ing­ful occu­pa­tions, the pre­ferred lever for change in occu­pa­tional therapy.

Con­fer­ence is in French with bilin­gual slides. Ques­tions and com­ments in Eng­lish are welcome.

When ?

Mon­day, Octo­ber 5, from 1:30 PM to 3 PM

Where ?

On Zoom*

Reg­is­tra­tion :

Please click here to reg­is­ter for this sup­port group.

Con­fer­ence – ALS and Genet­ics (in French)

There are numer­ous clin­i­cal tri­als now ongo­ing with ther­a­pies tar­get­ing the genetic forms of ALS. This webi­nar aims to pro­vide infor­ma­tion on genet­ics in ALS, the role of a genetic coun­sel­lor, con­sid­er­a­tions for genetic test­ing in ALS, and how ther­a­pies can tar­get the genetic forms of ALS.

The con­fer­ence will be given in FRENCH.

When ?

Tues­day, Octo­ber 12th, from 10:30am to 12 PM

Where ?

On Zoom*

Reg­is­tra­tion :

Please click here to reg­is­ter for this sup­port group.

*Our Zoom app user guides are avail­able here.


Seize the day experience

For more than a year, the pan­demic has made it dif­fi­cult for fam­ily and close friends to spend qual­ity time together. As the province opens up again, we are proud to offer you the Seize the Day expe­ri­ence, thanks to the con­tin­ued sup­port of the Tenaquip Foun­da­tion. The goal of this ini­tia­tive is to gift an oppor­tu­nity to reunite with loved ones and cre­ate last­ing mem­o­ries for fam­i­lies touched by ALS.

Whether it’s attend­ing a pic­nic with fam­ily or friends, a spe­cial show, a din­ner party, a day at the spa, we want to offer you a price­less expe­ri­ence while ensur­ing all pub­lic health and safety measures.

Past expe­ri­ences include: Travel expenses so that Monique Chartier and her hus­band can attend their grandson’s wed­ding in the small town of St-​Agapit; A fish­ing expe­di­tion while on a trip in the Bahamas for Mario Laberge and his fam­ily; A heli­copter tour dream come true for Syl­vain Plante; A catered evening from a renowned chef for Line Thi­boutot and her family.

Please let us know how YOU would like to seize the day* by send­ing your request to Kate Busch at This email address is being pro­tected from spam­bots. You need JavaScript enabled to view it..

We look for­ward to spread­ing some joy and cre­at­ing mem­o­ries for you and your loved ones!

- The ALS Soci­ety of Quebec’s team and the Tenaquip Foundation

*Please note that not all requests can be ful­filled at once, but know that we will do our best!

Cre­ate your own fundrais­ing event

Orga­niz­ing an event can be an enjoy­able and reward­ing project for fam­ily mem­bers and friends, even from a dis­tance. This fall, chal­lenge your­self to orga­nize your own fundrais­ing event, in per­son or vir­tu­ally, and raise funds to sup­port our com­mon mis­sion to #StrikeOutALS!

With the sup­port of the ALS Soci­ety of Que­bec, you can help improve the daily life of peo­ple liv­ing with ALS. Visit our web­site, or con­tact our This email address is being pro­tected from spam­bots. You need JavaScript enabled to view it. to sub­mit your event, or for more infor­ma­tion on fundraising.

ALS Soci­ety of Que­bec
This email address is being pro­tected from spam­bots. You need JavaScript enabled to view it. | als​-que​bec​.ca

5415, rue Paré, bureau 200, Mont-​Royal, Que­bec H4P 1P7

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The McGill Uni­ver­sity Health Cen­tre is not affil­i­ated with the ALS Soci­ety of Que­bec; shared for infor­ma­tion pur­poses only.

Last Updated: Wednes­day, 29 Sep­tem­ber 2021 15:59