ALS Que­bec Upcom­ing events 2022

In this newslet­ter, you will find:

- Upcom­ing vir­tual sup­port groupsto attend;

- A link to watch the record­ing of the con­fer­ence “To learn more about ALS with Dr.Geneviève Matte”;

- Infor­ma­tion about the “Seize the Day” expe­ri­ence;

- Var­i­ous ways on how you, your fam­ily and friends can be part of Team ALS QC !

Upcom­ing Vir­tual Sup­port Groups

Vir­tual Sup­port Group – For newly diag­nosed ALS mem­bers and their loved ones

Receiv­ing a diag­no­sis of ALS implies its fair share of emo­tions, ques­tions, and changes. The goal of this group is to pro­vide a place to exchange and to pro­mote a bet­ter under­stand­ing of the dis­ease and its dif­fer­ent stages, inspired by each person’s unique con­text and reality.

When ?

Thurs­day, April 28, from 1:30 PM to 3 PM

Where ?

On Zoom*

Reg­is­tra­tion :

Pleaseclick hereto reg­is­ter for this sup­port group.

*Our Zoom app user guides are avail­able here.

Con­fer­ence Record­ing – To learn more about ALS with Dr. Geneviève Matte

On Tues­day, April 12th was held the con­fer­ence “To learn more about ALSpre­sented by Dr. Geneviève Matte (Clin­i­cal Assis­tant Pro­fes­sor, Depart­ment of Neu­ro­sciences, Fac­ulty of Med­i­cine, Uni­ver­sité de Mon­tréal, Research inves­ti­ga­tor, CHUM Research Cen­tre). This pre­sen­ta­tion explains what ALS is, it’s his­tory and where we are today in terms of under­stand­ing the ill­ness. This con­fer­ence is in French with bilin­gual slides.

If you missed this con­fer­ence and would like to watch the record­ing, click here.


Seize the Day was launched in 2018 with the gen­er­ous sup­port of the Tenaquip Foun­da­tion with the pur­pose of grant­ing a spe­cial wish and cre­at­ing last­ing mem­o­ries for a per­son liv­ing with ALS and their fam­ily. Bring­ing joy and delight into the lives of fam­i­lies with ALS is the num­ber one goal of the program.

Thanks to the « Seize the Day » pro­gram, Holly Man­ning and her mother Susan Rowse spent a won­der­ful after­noon on a boat at the Mont Trem­blant Aquatic Centre.

Fam­i­lies also took a Spa day together, spent a day boat­ing on the lake, and trav­elled to spend time with their loved ones who live far from them.

Please let us know how YOU would like to seize the day by send­ing your request to Kate Busch at This email address is being pro­tected from spam­bots. You need JavaScript enabled to view it.. We look for­ward to spread­ing some joy and cre­at­ing mem­o­ries for you and your loved ones!

- The ALS Soci­ety of Quebec’s team and the Tenaquip Foundation


Join the Walk to End ALS!

On June 18, 2022, let’s gather across the province for the Walk to End ALS, which will be in hybrid for­matthis year!

Dur­ing the month of June, ALS Aware­ness Monthor on Sat­ur­day June 18th, 2022, we invite you to plan your own walk in your region or join an in-​person walk close to you! Stay tuned for fur­ther details!

Join us for the 15th edi­tion of the Ride to Fight ALS, pow­ered by TELUS Health.

Once again, this year the event will be in hybrid for­mat. Whether you are with us in Saint-​Hyacintheon Fri­day, August 26 and Sat­ur­day, August 27, 2022, or at a dis­tance, at the time and place of your choice, we will all ride together for the cause.

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Come sup­port the ALS Soci­ety of Que­bec by run­ning, walk­ing or wheel­ing at the 21K de Mon­tréal char­ity chal­lenge, the Marathon Beneva de Mon­tréal or the Bromont Ultra.

Orga­niz­ing an event can be a fun and reward­ing project for fam­ily mem­bers, friends, and col­leagues, as well as a show of sup­portfor peo­ple with ALS and their fam­i­lies. Spaghetti din­ners, brunches, box­ing tour­na­ments, bake sales, social events — any­thing to help beat ALS.

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Our vol­un­teers are essen­tial to our mis­sion.
If we suc­ceed each year in car­ry­ing out our projects and events, it is because of com­mit­ted and ded­i­cated indi­vid­u­als who give the most pre­cious thing they have:
their time.

They put their pro­fes­sional and per­sonal skills at the ser­vice of our cause and we could not sup­port so many fam­i­lies with­out them

Are you com­mit­ted to the fight against ALS? Are you com­fort­able speak­ing in pub­lic and would like to share your story?
Join the
Ambas­sadors’ Club! You will have the oppor­tu­nity to rep­re­sent the ALS Soci­ety of Que­bec and become a spokesper­sonat var­i­ous events such as fundrais­ers and conferences. […]

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ALS Soci­ety of Que­bec
This email address is being pro­tected from spam­bots. You need JavaScript enabled to view it. | 514 7252653 | als​-que​bec​.ca
5415, rue Paré, bureau 200, Mont-​Royal, Que­bec H4P 1P7

Last Updated: Mon­day, 25 April 2022 15:05